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Mighty contributor Tom Seaman shares the powerful lesson he learned about his health after a hurricane destroyed his potted plants. → Read More
"I secretly wish you could live in my body for just one day." → Read More
While I truly believe that people have good intentions, their opinions and comments often miss the mark when it comes to what we experience living with dystonia. Some of the many things I’ve heard include: “It’s all in your head.” “You’re just having a bad day.” “Everybody gets tired.” “You’re just depressed.” “You’ll just have to tough it out.” “If you would just get out more…” “There are… → Read More
I have lived with dystonia for 15 years. For more than half of those years, I had a hard time asking for help. My ego stood in the way. I was certainly helped by my loved ones, but it came with guilt until I put myself in their shoes. They wanted to help. They just didn’t know how, and I didn’t know how to ask because I struggled with the reality that I had limitations. One time I had to fly… → Read More
Living with dystonia is sometimes reminiscent of the plight of Sisyphus, a king from Greek mythology. Sisyphus was condemned to an eternity at hard labor. His punishment was to roll a massive boulder up a hill until he reached the top. However, right before he reached the top the boulder rolled all the way down and he had to repeat the task over and over. If you have dystonia, this might sound… → Read More
"People want to know what it is, how it works and how it helps me." → Read More
When my dystonia was severe, my neck was turned and locked towards my right shoulder. Most people would look and not say anything. Then there were some who looked and asked questions, and then there were a few who were downright rude. Those were the tough ones to handle early on because I was already angry for having dystonia and I didn’t need someone to put fuel on that fire. However, one… → Read More
I used to be one of the many people with dystonia who experience panic attacks, and it felt like torture. One of my former triggers was driving, even around my own town. Forget long distances. I used to panic if I wasn’t the first car at a red light and didn’t have a way to turn off the road. I felt like I was going to have a heart attack or pass out. My heart would pound and my hands would… → Read More